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| 4 months old |
On June 18th 2013, our soon to be 5 month old baby girl was diagnosed with Left Coronal Craniosynostosis. We were told she missed the window for having the smaller endoscopic surgery and that she would need a major reconstructive surgery of her skull around one year of age. We were determined to find a doctor who would still do the smaller surgery. This is documentation of our journey in hopes of helping others who are going through the same thing.
Wednesday, May 29, 2013
The checkup
We went for Alice's 4 month check up on May 29th, 2013. Everything was normal until the end when she started talking about specialists. Our pediatrician wanted us to go see a neurosurgeon for a mild misshaped forehead and an eye doctor to check out her clogged tear duct. I did notice a mild misshaped forehead early on but assumed it was from birth and would correct itself with time...we had no idea of what was to come...
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