I can’t believe our sweet girl is 7. As I edited her birthday pictures, reality hit. Picture after picture I couldn’t deny what I was seeing...
Last week I took Alice to the ophthalmologist because of concerns. Just when I think we are in the clear, I get a reminder that craniosynostosis will follow Alice forever. Alice will very likely be having eye surgery in the near future. She started having very noticeable problems again about a month ago. The drifting has gotten bad and it’s really bothering her. I am so reluctant and just want to avoid the surgery but my gut is telling me she needs to have this done.
When she was cleared a while back, it was because she was able to control the drifting. She could pull it back in on cue. So they said she no longer needed the surgery. Now it is happening so often and she is not controlling it well. I don’t want her being bothered by it and blinking constantly. We’ve tried some vision therapy stuff (like we did before) but it hasn’t helped yet. We are going to give it more time then make a decision.
I tried so hard to hold back the tears in the office that day. The word ‘surgery’ just triggered me. I couldn’t fight the tears. Every time I talk about it, I cry. The thought of her having to go through something else, after having such a big surgery when she was a baby, just kills me. No parent likes the thought of their kid being put under anesthesia. The thought of my other kids having surgery on anything is upsetting as well, this just triggers me in a different way. It’s so hard to put into words how it makes me feel. I know this is a very small surgery compared to her craniosynostosis surgery but it doesn’t make it easier. I knew my friend in Texas would understand how I am feeling so I messaged her right away. Her son also had surgery for craniosynostosis when he was a baby so she “gets it”. She wishes, like I do, that we could just put this all behind us.
It took me a week to find the words. Just wanted to give a quick update Please keep her in your thoughts. I will keep you posted.
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| Happy 7th Birthday Alice! |
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| Can’t believe this sweet thing is 7 years old! |
