I knew it would happen one day, the day she’d look in the mirror and ‘see it’. Left/Right Coronal Craniosynostosis and the asymmetry it causes is much more obvious in the mirror image. Tonight when getting ready for bed she looked in the mirror and said, “Something is wrong with my eyebrows, they look weird”. I asked her what she meant. She said “One is higher than the other one” We have talked to her about the surgery and how the doctors ‘fixed her head’ but not in a lot of detail. I told her that the Craniosynostosis was on the left side of her head so the left side may not look exactly like the right side and that she was beautiful.
We always said that if her asymmetry bothered her as she got older, then we would address that then. We will see but we are thankful she has done so well and hasn’t ‘needed’ any other surgery.
With that being said, I wanted to follow up about her eye condition. As of now, we are just waiting it out and seeing how her eyes do. They seem to have improved so we are not rushing into surgery. If it starts to get bad again and bothers her then we will revisit that option.
I hope everyone is doing well and staying healthy in these crazy times.
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| I ordered this shirt a couple years ago from Cranio Care Bears and had forgotten about it until recently 💕 |
