Dr Magge thought she looked pretty good. He took head measurements and she had a little head growth since our last appt in June. He could also feel the bone bridging over the gap where he did the strip craniectomy. Which basically means its growing back together. He asked us if there were any concerns with her developmentally or her complaining of headaches or holding her head...and we said no. These things would be signs of pressure on her brain.
He told us that he would be following her for many years after surgery. He also said that just because she had surgery it doesn't mean she is cured of Craniosynostosis. It's something he will have to watch and monitor.
Praying that everything will be ok and that there will be plenty of room for her brain to grow. We will followup with him in 6 months. She's not in the clear yet...which is something I didn't really expect to hear today...
|waiting to see Dr Magge|
September is Craniofacial acceptance month. Please share Alice's story to help us raise awareness. Thank you.