On June 18th 2013, our soon to be 5 month old baby girl was diagnosed with Left Coronal Craniosynostosis. We were told she missed the window for having the smaller endoscopic surgery and that she would need a major reconstructive surgery of her skull around one year of age. We were determined to find a doctor who would still do the smaller surgery. This is documentation of our journey in hopes of helping others who are going through the same thing.
Friday, August 9, 2013
Alice in Cranioland Video
Here is a video I made about Alice's Craniosynostosis Journey. Please help us raise awareness by sharing this video. The earlier Craniosynostosis is caught the sooner these sweet babies can be treated. Parents need to know that there are doctors out there that will do the endoscopic surgery past 3 months of age. We hope our story helps to get that information out there.