|1st trip to the pumpkin patch|
|Apple picking in the mountains|
When I began this blog I wasn't sure which direction we were going endoscopic or CVR (cranial vault reconstruction) All I knew is that I felt a strong feeling that I needed to document everything and put it out there and I am so glad that I did. I have received so many messages and had so many people reach out to me...some telling me that they follow Alice's story and they talk about Alice and keep their friends updated. Others have contacted me about surgery questions....but what really got me and made me realize that this blog is doing what I sought out for it to do...was when I received a message thanking me for creating the blog...and this is why...(message below)
" I wanted to thank you as your blog helped my son's early diagnosis …I knew something was not right with his head but didn't worry too much as Dr.’s attributed it to birthing process and said it will be okay in few weeks…
Just out of curiosity I started googling on symptoms and bumped on your blog….his head shape and other facial asymmetry was similar to pictures you had posted….that’s when I knew it was more serious and started talking to specialist …"
My advice for parents out there...if you feel in your gut that something isn't right with your baby or child do not hesitate to bring it up! Even if your doctor says its nothing but you feel in your gut that it is something, get a second opinion or third opinion. Even after diagnosed you owe it to your child to get many opinions. If I had accepted the word of the first doctor....where would we be? I was told that we should watch her for a few months and see if things got better or worse...if I had done that she would have missed the possibility for the endoscopic surgery all together. I can't stress how important it is to get many opinions! You have to be your child's advocate...you don't just accept the first thing that is said to you by the first doctor. Fight for your child!
|Alice's Halloween costume. She won a $25 gift card in a costume contest!|
|Pumpkin Baby :-)|
|Alice with her big brother and big sister|