On June 18th 2013, our soon to be 5 month old baby girl was diagnosed with Left Coronal Craniosynostosis. We were told she missed the window for having the smaller endoscopic surgery and that she would need a major reconstructive surgery of her skull around one year of age. We were determined to find a doctor who would still do the smaller surgery. This is documentation of our journey in hopes of helping others who are going through the same thing.
Tuesday, May 24, 2016
Craniosynostosis Endoscopic Surgery Support Group
Please join this group and post any questions or stories about Endoscopic Surgery for Craniosynostosis. Hoping to help others just starting this journey with Craniosynostosis