feeling defeated and down
I have never felt the feelings I am feeling right now or gone through these emotions of feeling helpless, and that the fate of my child's surgery is in their hands and not my decision. So in hopes of not feeling let down again, I don't expect to hear anything tomorrow either, then Thursday is a holiday...we will be lucky if we hear something by Friday. In the meantime we are on standby, my parents are on standby in case they have to keep the kids while we are gone and everything is basically on hold...can't even think about the Fourth of July or celebrating. I sure hope I have an update soon, will let you all know when I hear something. Thanks so much to everyone for your kind words and prayers, we really appreciate it.
Here's a video of my happy little Alice today...